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05 Jul 2012
By Jacko_the_lad

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Diagnosed with heart condition. :(

32 Replies 472 Views Created 05-07-2012
05 Jul 2012
By Jacko_the_lad

Got rushed into hospital last night with palpitations and now I've been diagnosed with Marfan syndrome. :(

 

It was scary. :(

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I am really sorry to hear about that. I hope you get better soon. Take It easy ok.
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You learn to live with it. (Not your specific condition just having a heart condition in general)

 

Tbh unless I told someone they wouldn't even know.

                                

     

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So what does that mean then?

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You won't find pity on this type of forum. You need to find a forum with people who are in your situation.

You'll get a load of silly comments, pre-warning.

 

http://forum.marfan-forum.org.uk/

 

http://www.marfanlife.net/bb3/index.php

 

http://www.mdjunction.com/forums/marfan-syndrome-discussions

 

Just Google "Marfan syndrome forums" for others. I don't know if those sites are good, but you can find out for yourself :)

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Не верь, не бойся, не проси


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Sorry to hear that dude, hope you're feeling a little better now :)
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Good job you've found out about it now as my mate died from it 17 years ago at the age of 28. Obviously there's no cure but if you know about it you can have regular checks. My friend wasn't so lucky.
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Warren_Jeeves wrote:
Good job you've found out about it now as my mate died from it 17 years ago at the age of 28. Obviously there's no cure but if you know about it you can have regular checks. My friend wasn't so lucky.

Man, that sucks. :(

 

Was he not diagnosed with it, or diagnosed late?

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:( sorry to hear that. Is there stuff you can't do or is it just try to be healthy and medication?
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michelle_tabor wrote:
:( sorry to hear that. Is there stuff you can't do or is it just try to be healthy and medication?

I think it's just strenuous exercise and some sports. I don't think it affects lifestyle too much.

 

I've got to have scans in a couple of weeks so I'll know more then.

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Sorry to hear that :(

Not personally heard of that before. Just been having a read about it now.

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mattsimmo wrote:


Not personally heard of that before. Just been having a read about it now.



Me neither.  That's probably why I'm not a Doctor.

 

I hope you will be ok Jacko.

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My friend didn't have a clue about it Jacko, he just went one day although he had told a few people he'd being having a few dizzy spells.
Apparently it's genetic so his brothers and sisters were checked for it too, his older brother was thought to have it after tests and told not to exert himself, so he had to stop training with me and was even told to make sure his wife went on top.
Anyway he was given the all clear a year or so later.
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Never heard of it, but I like jacko, so take it easy <3
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Really sorry to hear that Jacko. :smileysad:

 

Group hugs for you.

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:(

Hope all things go well.
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Warren_Jeeves wrote:
My friend didn't have a clue about it Jacko, he just went one day although he had told a few people he'd being having a few dizzy spells.
Apparently it's genetic so his brothers and sisters were checked for it too, his older brother was thought to have it after tests and told not to exert himself, so he had to stop training with me and was even told to make sure his wife went on top.
Anyway he was given the all clear a year or so later.

Yeah, the doctors told me it's hereditary.

 

I don't know who else in my family has it, though. Unless my great-grandparents had it, I don't know.

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I don't think you would know if your grandparents were carrying the gene back then as from what I know it's a pretty rare condition and not many doctors even know that much about it still (although it seems more do these days than when I first heard of it). Do you have long fingers or limbs? That's one of the outward signs of maybe having it if I remember correctly.

My friends younger sister and brother were built like that but were in the clear as were his two kids.

Well anyway, I know it's really crap news for you and all but I'm glad to hear you got a fast diagnosis and I'm sure you will do good now that your doctors know you have a problem.
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Only the good people in life seem to have the problems, I lost my twin bro 6 years a go to a heart condition at 22 he was ok day before and gone the next. Main thing is you have a diagnosis from the doctors and should lead a normal lifestyle.

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Poor Jacko, go easy.

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Sorry to hear that mate, take it easy bud.

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