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Got rushed into hospital last night with palpitations and now I've been diagnosed with Marfan syndrome. :(
It was scary. :(
You learn to live with it. (Not your specific condition just having a heart condition in general)
Tbh unless I told someone they wouldn't even know.
You won't find pity on this type of forum. You need to find a forum with people who are in your situation.
You'll get a load of silly comments, pre-warning.
Just Google "Marfan syndrome forums" for others. I don't know if those sites are good, but you can find out for yourself :)
Good job you've found out about it now as my mate died from it 17 years ago at the age of 28. Obviously there's no cure but if you know about it you can have regular checks. My friend wasn't so lucky.
Man, that sucks. :(
Was he not diagnosed with it, or diagnosed late?
:( sorry to hear that. Is there stuff you can't do or is it just try to be healthy and medication?
I think it's just strenuous exercise and some sports. I don't think it affects lifestyle too much.
I've got to have scans in a couple of weeks so I'll know more then.
Not personally heard of that before. Just been having a read about it now.
Me neither. That's probably why I'm not a Doctor.
I hope you will be ok Jacko.
My friend didn't have a clue about it Jacko, he just went one day although he had told a few people he'd being having a few dizzy spells.
Apparently it's genetic so his brothers and sisters were checked for it too, his older brother was thought to have it after tests and told not to exert himself, so he had to stop training with me and was even told to make sure his wife went on top.
Anyway he was given the all clear a year or so later.
Yeah, the doctors told me it's hereditary.
I don't know who else in my family has it, though. Unless my great-grandparents had it, I don't know.
Only the good people in life seem to have the problems, I lost my twin bro 6 years a go to a heart condition at 22 he was ok day before and gone the next. Main thing is you have a diagnosis from the doctors and should lead a normal lifestyle.
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